
Congratulations on taking the first step
in seeking information about your recent diagnosis of Pulmonary Fibrosis!
First and foremost, it's important to remember that you are not alone. We are here to provide you with support and guidance during this time. ​ Pulmonary Fibrosis is a challenging condition, but there are many resources and a supportive community available to help you along the way. One of the best ways to navigate this journey is by educating yourself about the disease. Pulmonary Fibrosis is a progressive lung disorder that causes scarring and stiffness in the lung tissue, making it difficult to breathe. Understanding the symptoms, potential causes, and available treatments can empower you to make informed decisions about your health. ​ It's crucial to establish a strong support system of healthcare professionals, friends, and family who can offer emotional support and practical assistance. Your medical team will guide you through treatment options, which may include medications, pulmonary rehabilitation exercises, and oxygen therapy. Additionally, maintaining a healthy lifestyle by eating well, staying physically active (within your doctor's recommendations), and managing stress can positively impact your overall well-being. ​ Remember to be patient with yourself and take it one day at a time. Coping with a chronic illness can be challenging, both physically and emotionally. We are here to help you to seek out support groups, online communities, and counseling services to connect with others who are going through similar experiences. Their wisdom and empathy can be invaluable. ​ Lastly, always keep hope alive! Medical research is constantly advancing, and new treatments and therapies are being developed. Stay positive and focus on living your life to the fullest, adapting to your new normal, and cherishing the things that bring you joy. ​ We are here for you whenever you need assistance, so don't hesitate to reach out.
You've got this!
Steve's Top Picks
Here are my Top Picks to help you stay informed about the latest advancements in treatment options and support resources to empower you and your family on your journey with Pulmonary Fibrosis.

Hi, I’m Steve
A Pulmonary Fibrosis patient. I'm passionate about sharing thoughts and information on everything that makes my days better.
I have had my Interstitial Lung Disease (ILD) diagnosis for over three and a half years, and only recently do I feel I am making progress in finding valuable, relevant information about my ILD condition and available treatments.
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Recently, my 83-year-old friend in Arizona, Rosemary, and I connected by phone, and she told me she was diagnosed with Interstitial Lung Disease. For the past one and a half years since she learned she had Pulmonary Fibrosis, she did not know WHERE TO TURN for information about her disease!
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Rosemary was able to connect with me via a Zoom call that afternoon with Elida at the UCSF ILD support group. Rosemary was thrilled to connect with a support system, and she felt hopeful about joining a meeting with other ILD patients from California and Oregon.
I want to continue to help folks like Rosemary who have a difficult time discovering the many different ways information can be found by researching the internet.