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Free Pulmonary Health Resources & Information

When asking a friend is not enough.

The resources below helped me when I was first diagnosed with Pulmonary Fibrosis.

The knowledge I gained guides me in dealing with my day-to-day challenges with PF.

I hope you find them informative and inspirational too.

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More information can be found by searching the internet using keywords:

Interstitial Lung Disease, and Pulmonary Fibrosis.

Organizations

Pulmonary Fibrosis Foundation

Information to help you understand more about PF, treatments available and finding a PF support group.

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PFWarriors Info

An international network that provides support, education, inspiration, and hope for individuals and families.

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Pulmonary Wellness Foundation

Providing PF Education through Books, Webinars, Lecture Series, Pod Casts, Meta (Facebook) group and Live Talks.

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American Thoracic Society

Providing information on all types of diseases that affect global health through advocacy and eduction.

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Pulmonary Fibrosis News

Pulmonary Fibrosis news and information. It does not provide medical advice, diagnosis or treatment.

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American Lung Association

A 120 years helping people protect their lungs through researching treatments and cures for lung diseases.

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Nationl Jewish Health

Information to help you with your PF journey, find a doctor, learn more about PF, research and clinical trials.

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National Institutes of Health

Link to NIH search results for Pulmonary Fibrosis. Contains many links to research, education, and treatment.

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Clinics

UCSF Pulmonary Department

Information about ILD and other pulmonary diseases, patient care, and ongoing research at UCSF Medical.

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Cleveland Clinic

Explore lung, breathing and allergy disorders, treatments, tests and prevention services.

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Stanford Clinics for Interstitial Lung Disease

Interstitial Lung Disease (ILD) overview, symptoms, causes, types of ILD, diagnosis and treatments.

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Mayo Clinic

Information about Pulmonary Fibrosis symptoms, causes, diagnosis, treatment and list of doctors and departments.

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Diet, Exercise & Meditation

Pulmonary Fibrosis MD

Article:

Nutrition & Weight Management
with Pulmonary Fibrosis

Read Article
Longevity website

Article:

Pulmonary Fibrosis Diet:
Eat These 8 Foods

Read Article
Pulmonary Fibrosis Now

Article:

6 Stress-Reducing Mindfulness Practices for People with IPF

Read Article
Pulmonary Fibrosis MD

Article:

Exercise and Pulmonary Fibrosis

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Read Article
Lung Institute

Article:

Creating a Pulmonary Fibrosis Diet

 

Read Article
Action for Pulmonary Fibrosis

Article:

Breathlessness

​

Read Article
Lung Institute

Article:

Best Pulmonary Fibrosis Breathing Exercises

Read Article
PF Warriors Shield

Article:

5 Secrets from Patients Living with Pulmonary Fibrosis

Read Article

Videos

Pulmonary Wellness Foundation

PF Webinar Series

Pulmonary Wellness 101 – The Basics

Webinars by Dr. Noah Greenspan

 

View Video
Bill Vick Video

YouTube Video

Bill Vick: Lessons Learned During
My Journey with IPF

 

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Alberta Lung Foundation

YouTube Video

PF & ILD Treatment Options

 

 

View Video
Cough Tracking Webinar.jpg

Webinar

Cough Tracking
The Science of Chronic Cough

​

View Video
Canadian Pulmonary Fibrosis Foundation

YouTube Video

So You've Been Diagnosed with

Pulmonary Fibrosis. What's Next?

 

View Video
Rick Clark Video

YouTube Video

Rick Clark:
My Life with Pulmonary Fibrosis

 

View Video
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YouTube Video

Pursed Lip Breathing Technique

National Jewish Health

 

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YouTube Video

Lung Disease:
Recovering a Healthy and
Active Lifestyle

View Video

Podcasts

Journeys Through Pulmonary Fibrosis Boehringer Ingelheim International GmbH.png

A podcast series that aims to motivate those who have PF.  It tells touching tales of fortitude, and the value of experiencing life to the fullest.

Listen
Pulmonary Fibrosis Podcast Cumulus Media.png

Tune in to the Pulmonary Fibrosis Podcast episodes covering various IPF related topics, and learn about IPF and its treatments.

Listen
Spotlight on Pulmonary Fibrosis BII GbH.png

A Podcast series bringing together leading physicians, patients and advocates to discuss topics important for patients with PF.

Listen
Medscape InDiscussion Medscape.png

In this podcast series join thought leaders and clinical specialists as they discuss various useful suggestions for improving patient care. 

Listen

Downloadable Documents

Living Well with ILD Download

Living Well with ILD-Best ILD Hacks

Stanford's Pulmonary Fibrosis Support Group

Advice for Patients from Patients

Download
Home Based Exercise Handout Download

Home Based Exercise Handout

Created by: American Assoc. of Cardiovascular & Pulmonary Rehabilitation and PFF

Download
Best Practices for Acid Reflux & CPAP Download

Best Practices for Acid Reflux & CPAP

Personal experience of 

Rick Johnson, IPF patient

Download

Transplant Information

Preparing for a Lung Transplant Download

Preparing for a Lung Transplant

Created by

Pulmonary Fibrosis Foundation

Downloard

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